Being the mother or caregiver of a person with Down syndrome often means becoming an advocate, problem-solver, educator, connector, and leader—whether you ever intended to be one or not.
Mothers Leading Change is a three-day retreat created to recognize that experience, strengthen those skills, and help women use what they have learned to create meaningful change for their families and communities.
This is more than a weekend away.
Our goal is to build a statewide network of informed, connected, and confident women who can support other families, strengthen their communities, and help improve opportunities for people with Down syndrome throughout New Mexico.
Your experience has value. Your voice has power.
[ APPLY FOR THE RETREAT ]
Mothers Leading Change is an intimate, three-day leadership and advocacy retreat bringing together approximately 15 mothers and caregivers of individuals with Down syndrome from communities across New Mexico.
The weekend will combine learning, conversation, advocacy training, leadership development, wellness, and time to connect with women who understand many of the same opportunities and challenges.
Participants will leave with practical tools, new relationships, and ideas they can put into action in their own communities.
We are seeking mothers and caregivers of individuals with Down syndrome from across New Mexico.
We especially want a group representing different communities, backgrounds, perspectives, and stages of life—from mothers of young children who are just beginning to navigate services and systems to women who have spent decades advocating alongside their adult children.
You do not need previous advocacy or leadership experience.
Lived experience matters.
We are looking for women who are curious, willing to share, ready to learn, and interested in helping make their communities stronger.
The retreat will include a mix of:
Advocacy and leadership workshops
Conversations with people who have created meaningful change
Education about navigating systems and resources
Peer-to-peer learning and discussion
Financial planning and future-focused conversations
Wellness and self-care activities
Time for reflection and connection
Practical planning for creating change at home
Opportunities to develop resources that can be shared with other New Mexico families
The weekend is intentionally small, allowing participants to build real relationships and have meaningful conversations.
Leadership does not necessarily mean running an organization, speaking at the Legislature, or having a title.
It might mean helping another parent prepare for an IEP meeting.
It might mean approaching a local employer about inclusive hiring, talking with a healthcare provider about better care, helping a family find services, or advocating for greater inclusion in a school or community.
Leadership starts by recognizing that what you have learned can help someone else.
Mothers Leading Change is designed to help you turn that experience into action.
Our goal is for the weekend to be a beginning—not an ending.
Participants will be encouraged to take what they learn back to their communities, share information with other families, connect people with resources, and identify opportunities for positive change.
During the retreat, participants will also help develop practical resources and materials that can be shared with families throughout New Mexico.
Together, we hope to create a growing statewide network of women who can learn from one another, support one another, and make change possible in communities large and small.
There is no cost to selected participants.
Retreat expenses are covered, including lodging, meals, retreat programming, workshops, and activities.
We do not want the cost of participating to prevent someone from applying.
February 19–21, 2027
Albuquerque, New Mexico
The retreat begins Friday evening, continues throughout Saturday, and concludes Sunday morning.
Additional travel and schedule information will be provided to selected participants.
Mothers Leading Change is intentionally designed as a small retreat.
A group of approximately 15 participants allows for deeper conversations, meaningful relationships, individual participation, and the opportunity for every woman to be heard.
We also hope to select participants representing different parts of New Mexico and different stages of the Down syndrome journey.
Absolutely not.
You do not need to consider yourself an advocate, activist, leader, or expert.
If you have supported and cared for someone with Down syndrome, navigated schools or healthcare, searched for services, solved problems, asked questions, celebrated successes, or helped your family through challenges, you already bring valuable experience to the room.
We can build from there.
Come ready to:
Learn. Share. Listen. Connect. Reflect. Participate.
And most importantly, come willing to consider one question:
How can what I have learned help someone else?
Participation is limited to approximately 15 women from across New Mexico.
The application is not intended to test your knowledge or previous advocacy experience. It simply helps us learn about you, your family, your community, and what you hope to gain—and contribute—during the weekend.
We encourage women from every part of New Mexico and every stage of the Down syndrome journey to apply.
[ BEGIN APPLICATION ]
The Down Syndrome Office and Resource Center (DSORC) connects people with Down syndrome and their families with information, support, resources, and opportunities throughout New Mexico and beyond.
Through education, advocacy, healthcare navigation, employment and housing resources, training, community engagement, and family support, DSORC works to help individuals and families navigate today while creating greater opportunities for tomorrow.
DSORC.org
You don’t need a title to be a leader.
You don’t need to know all the answers.
And you don’t need to change the entire state by yourself.
Sometimes change begins when one person takes what she has learned and brings it home to her community.
That is what Mothers Leading Change is about.
ABOUT THE RETREAT
Dear Mother and Caregiver,
The Down Syndrome Office and Resource Center (DSORC) is excited to invite mothers of individuals with Down syndrome from across New Mexico to apply for our Mother’s Leading Change Retreat.
Caring for and advocating alongside a person with Down syndrome can lead us down paths we never expected. Along the way, we become problem-solvers, advocates, educators, connectors, and leaders—often without ever giving ourselves those titles.
This three-day retreat is designed to recognize that leadership and help strengthen it.
The Mother’s Leading Change Retreat will bring together approximately 15 women from communities throughout New Mexico for a weekend of learning, connection, reflection, wellness, and leadership development. Through workshops, peer-to-peer conversations, advocacy training, financial planning, wellness activities, and time to recharge, participants will gain practical tools they can use not only within their own families but also in their communities.
This is more than a retreat. It is an opportunity to build a statewide network of informed, confident women who can help other families navigate the opportunities and challenges that come with raising, supporting, and advocating alongside a person with Down syndrome.
Together, retreat participants will also help develop resources and printed materials that can be taken back and shared with families and communities throughout New Mexico.
We are looking for women with different experiences and perspectives—from mothers of young children who are just beginning their journey to caregivers of adults who have spent decades navigating systems and advocating for change. You do not need previous leadership experience. Lived experience matters.
We simply ask that you arrive ready to learn, share, connect, and consider how you can use what you gain from the retreat to strengthen your own community.
Our goal is that when the weekend ends, the work continues. Participants will be encouraged to serve as community leaders, share information with other families, and help expand the network of leadership and support available to people with Down syndrome across New Mexico.
Your experience has value. Your voice has power. Your community needs leaders like you.
We hope you will apply and join us.
With gratitude,
Lena Armstrong-Strober Founder & Director The Down Syndrome Office and Resource Center (DSORC)
Down Syndrome Office & Resource Center
Resources, support, and advocacy for individuals with Down syndrome and their families.